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Community Members, Epidemiologists, and Political Leaders: Essential Partnership For Sound Health Policy

Ready! Fire! Aim! As one of my favorite TV detectives methodically asks herself: What’s wrong with this picture?

This odd sequencing of actions seems to have produced two remarkable features of the US health care system. We have the world’s most technically advanced array of medical services, and we exclude one out of every seven citizens from third party coverage for basic health care services. What are we aiming at? Profit? Health? Solidarity? Costs? Efficiency?

Last year’s national flirtation with system-wide health reform has passed into history. The managed care revolution was already well under way before last year and continues unabated. The full range of social goals behind this revolution is not clear, and we risk firing off yet another round of innovations before being sure what we really want to achieve. To be a real government of the people, by the people, and for the people, we need to clarify our social goals so that technical work by epidemiologists and others can help determine the means to these goals.

The Oregon Health Plan which created a prioritized list of health services as a means of guiding health care budget allocations is an important model for the necessary partnership between the public and the technical persons who provide needed data.

The distribution of tasks in this process is the paradigm I want to highlight. The community was charged with articulating values. The experts were charged with determining facts—the probabilities that valued outcomes would result from services used to treat specific health problems. The epidemiologic experts provide the social capacity to determine whether changes hit or miss the valued target. Epidemiology has a crucial role to play in the political ethical work of the community as it seeks to provision itself with the health care services it really wants.

For example, we need epidemiological data to make sense of the apparently simple notion of universality. Is universal coverage worth it from the point of view of effect on the population’s health status? Other epidemiologic data is needed to deal with the fact that coverage does not of itself provide access to effective services. The continuing studies of small area variations in medical care is an example of needed data.

Creating social impact is not a new role for epidemiology. It is at the center of the public health ethic. As managed care becomes more and more the delivery system of choice in both the public and private sectors, epidemiologists need to be ready to play a conscious role in this transformation. This is not a call to abandon scientific canons of valid and reliable data. But it is a challenge for epidemiologists to use the population-based perspective which is uniquely theirs and pay attention to how their facts affect (or fail to affect) social policy. The quality of life of the whole society is affected by how well decision makers see the consequences of policy choices and their impact on the values of the community.

The contemporary challenge for epidemiologists is to see themselves as partners with the general public and with policy leaders in creating social ethics solutions to complex problems. Policy leaders identify the next step agenda. The public articulates the values that make outcomes worth achieving. Epidemiologists and other technical experts provide the data by which leaders can organize, coordinate and calibrate social effort and keep it on target. Epidemiology, as a profession, should not stand apart from politics, nor hope to replace politics with a higher rationality. Society needs epidemiologists engaged in the political arena as committed partners arguing for the data in the effort to make political activity successful, democratic and fully human.

Published July 1995  v

 

 
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